We are going to do our own personal blogs that chronicle our day to day thoughts and feelings about RA. For the first one, let me tell you a little about me.
I am 38 years old and was diagnosed way back in my 20's with RA. It is hereditary on my maternal side of my family. Both my mother and uncle also have RA. I also have OA in my left knee, high blood pressure, and asthma. I think that is enough lol. I have been married for 15 years to a really wonderful guy. I talk a lot about him probably because I am still as crazy about him now as I was when I met him. He is my main support in dealing with this funky disease and I am his main support. We have 3 girls that are 21, 14, and 12. And one beautiful granddaughter that is 4. You will hear a lot about my family and how they deal with my RA. And their insane antics. If you have teenagers, you know what I'm talking about lol. I love animals and have a bunch of them. My dog is a Lab/Pit mix (altho he has no clue he is part pit lol he is sooooooo lab) and is my constant companion. We also have a Holland Lop bunny, a silver chinchilla, an albino rat, fish, and hermit crabs. I was a paramedic for many years until my knee forced me to retire early from it. I had a couple of different jobs after that but they weren't as satisfying as being a medic. I am now a Domestic Engineer lol. I don't plan on returning to work in the near future and I am planning on filing for my SS and SSI. I tend to focus on the emotional aspect of RA and helping people deal with not only their emotions about this disease, but also their partners emotions.
I am on a bunch of different meds because I have a bunch of different things going on lol. My main RA meds are Methotrexate (mtx) 15mgs injected once a week and Humira injected once every two weeks. My pain meds are morphine 30mgs twice a day and percocet. I also do 2 different meds to keep that blood pressure down, folic acid, Advair for my asthma, and prozac to deal with my depressive mood regarding the RA. I am not depressed all the time, but life can get to you. Especially life with RA. I do a ton of research into new meds and new treatments. I do not do any alternative therapies at this time because I have been down that road and none of them really worked for me.
I actually met the creator of Sushi (Crunchy...I loves yas babe) online on another forum and we just clicked. We have many strange parallels in our lives lol. I also met Katie (I loves yas too) on another forum and we just clicked too. Not a day goes by that I don't talk to either one of them. They help me so much in dealing with the RA. Crunchy created Sushi because she wanted a forum for people with RA by people with RA. We have many different areas to post on because RA isn't just dealing with the medical side of things, it effects our entire lives. So when she asked me to jump on board with her, I said yes faster than you could blink. She created a wonderful forum and it is turning into a great success.
Dealing with RA on a daily basis can really suck. We all have thoughts and feelings about it, but are either too scared or embarrassed to share them. Hopefully reading my blog will let people know that they are not alone in what they feel and are going thru everyday. I also hope it adds a smile to everyone faces because there are times I do believe that laughter can be the best medicine.
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You guys took on a big project when you created RASushi, and big projects are really big when you're also living with RA. It must feel thankless some days, so I thank you now. I like the classy vision and the spirit you bring it.
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