Well, went to the rheumy on the 5th. He signed the papers for FMLA for Danny, said to mail him the paperwork for the disabled parking placard, and gave me an order for a home health aide without batting an eyelash. Unfortunately my insurance does not cover a home health aide. Only for skilled nursing stuff.
Rheumy seems to think that the immovable toes could possibly be neuropathy since a steroid injection and now 2 rounds of oral steroids are not doing a damn thing for them. So it probably is not RA related so to speak. Well, it isn't the RA directly causing the issue, but indirectly. So it is off to the neurologist for me. Unfortunately rheumy is afraid I really waited too long to get this treated and that I might lose function not only in the toes, but in my foot permanently. We will see what the neurologist says when I see him at the beginning of March. I also had a 3 phase bone scan. That was interesting to say the least. I should get the results of that by the end of next week. I will probably call rheumy Thursday if I have not heard from him by then.
Life is getting to the point of where I am very frustrated and tired of being sick. Being able to do minimal things in life is getting to me. My rheumy said try not to be frustrated but it is easier said than done. I was once a pretty active person and now nothing but a regime of rest, pain killers, tests, and injections. I feel useless to my family and a burden to them. They have to do some of my personal care and all of my housework. Hopefully this is just because winter has been particularly hard on me (and others according to my rheumy) and I will start to get better come Spring time. I certainly hope so. I want to camp and all that good stuff. But that is going to depend on my foot. And my knee. No knee replacement until my foot issue is resolved. I am hoping and praying that it can be resolved either medically or with some therapy. I don’t want to face surgery on my foot because that just sounds very painful. But if that resolves it and saves my toes, that is what I have to do.
We are getting a shower chair and a hand held shower head for me sometime this week. It will be easier for me to sit in the shower and easier to wash my hair whether I am doing it or Danny and the kids are doing it.
My family and my girlfriends have been just wonderful to me thru this ridiculously long flare. I love you all and thank you so much for being there for me.
We have a new family member! Our niece had her baby on Feb 3rd! Welcome to the family Grace Lynn! She weighed in at 8lbs. 2oz and 20.5 inches long. Mom and baby are doing just great. Big brother Tyler is just as proud as can be. He is a fantastic big brother. We love you all and will hopefully be down soon to see everyone. Congrats Jackie, Mike, and Tyler!
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