Not too much going on around here. Danielle is going to the district spelling bee and won a poster contest about 2nd hand smoke. YOU GO GIRL!!!!
I dropped my pred dosage to 10.5mgs and went back to feeling like shiznit. I don’t think winter is ever going to come to an end. I really wish it would. The toes are still not moving at all. Bed rest is getting annoying and tiresome. So is getting around with crutches. Oh well, such is life. Have to deal with what rolls my way.
I got an electric blanket! OMG so incredibly awesome. I love sleeping in toasty goodness. It feels like you just took your blanket out of the dryer and it stays warm forever lol. All my joints are nice and warm and I am waking up with slightly less stiffness in the morning. Plus I don’t have the heaviness of a bunch of blankets piled on top of me.
After taking a week off of work to care for me when I was really bad, Danny is back to pounding out the overtime. He is working all weekend this weekend. There are times I really feel like a single parent and my boyfriend is spending the night with me lol. I couldn’t really ask for a better husband or for more support from him. Sometimes the kids just get draining. I’m sure I get draining on them too lol. I’m getting to the point where I can do more household chores and I am sure that is a relief for them. I move pretty slow doing them, but I get the job done. I want to take over cooking dinner again, but Arielle insists on doing it. OK, let her. She is getting better and better every day with cooking. There are times you can not tell that a 14 year old girl made supper. You would think it was an adult that made it. She was taught in her Foods class how to cut up a chicken and now she wants to get a whole chicken and cut it up and make soup out of it. I say you go girl!! She also has a recipe for chicken flavored with lime. We are going to let her make that too. This kid has a talent. I’m very proud of her.
I am crocheting again!! Even tho I am not doing as well on the 10.5mg dose of pred, I can still crochet. I have to take breaks and I am not as fast as I used to be, but at least I am doing it again. That is a huge milestone for me. I struggled thru finishing the blanket for my great niece and didn’t crochet for a month or so after that. I just couldn’t. Now I am back to working on the huge blanket for my sis in law.
I can’t wait to get down to IL to see our new niece. With all the OT Danny is working, I don’t know when we will make it down. Thankfully my niece has a website and she posts pics regularly of the baby. She really is cute. Like Danny, Mike makes a good looking girl lol. Jackie is doing well and the baby is sleeping well. Thank goodness.
I’m outta here for a yogurt and a piece of fruit. MMmmmm food. I hate pred sometimes lol.
Saturday, February 17, 2007
Saturday, February 10, 2007
Doc Visit and Other Stuffs
Well, went to the rheumy on the 5th. He signed the papers for FMLA for Danny, said to mail him the paperwork for the disabled parking placard, and gave me an order for a home health aide without batting an eyelash. Unfortunately my insurance does not cover a home health aide. Only for skilled nursing stuff.
Rheumy seems to think that the immovable toes could possibly be neuropathy since a steroid injection and now 2 rounds of oral steroids are not doing a damn thing for them. So it probably is not RA related so to speak. Well, it isn't the RA directly causing the issue, but indirectly. So it is off to the neurologist for me. Unfortunately rheumy is afraid I really waited too long to get this treated and that I might lose function not only in the toes, but in my foot permanently. We will see what the neurologist says when I see him at the beginning of March. I also had a 3 phase bone scan. That was interesting to say the least. I should get the results of that by the end of next week. I will probably call rheumy Thursday if I have not heard from him by then.
Life is getting to the point of where I am very frustrated and tired of being sick. Being able to do minimal things in life is getting to me. My rheumy said try not to be frustrated but it is easier said than done. I was once a pretty active person and now nothing but a regime of rest, pain killers, tests, and injections. I feel useless to my family and a burden to them. They have to do some of my personal care and all of my housework. Hopefully this is just because winter has been particularly hard on me (and others according to my rheumy) and I will start to get better come Spring time. I certainly hope so. I want to camp and all that good stuff. But that is going to depend on my foot. And my knee. No knee replacement until my foot issue is resolved. I am hoping and praying that it can be resolved either medically or with some therapy. I don’t want to face surgery on my foot because that just sounds very painful. But if that resolves it and saves my toes, that is what I have to do.
We are getting a shower chair and a hand held shower head for me sometime this week. It will be easier for me to sit in the shower and easier to wash my hair whether I am doing it or Danny and the kids are doing it.
My family and my girlfriends have been just wonderful to me thru this ridiculously long flare. I love you all and thank you so much for being there for me.
We have a new family member! Our niece had her baby on Feb 3rd! Welcome to the family Grace Lynn! She weighed in at 8lbs. 2oz and 20.5 inches long. Mom and baby are doing just great. Big brother Tyler is just as proud as can be. He is a fantastic big brother. We love you all and will hopefully be down soon to see everyone. Congrats Jackie, Mike, and Tyler!
Rheumy seems to think that the immovable toes could possibly be neuropathy since a steroid injection and now 2 rounds of oral steroids are not doing a damn thing for them. So it probably is not RA related so to speak. Well, it isn't the RA directly causing the issue, but indirectly. So it is off to the neurologist for me. Unfortunately rheumy is afraid I really waited too long to get this treated and that I might lose function not only in the toes, but in my foot permanently. We will see what the neurologist says when I see him at the beginning of March. I also had a 3 phase bone scan. That was interesting to say the least. I should get the results of that by the end of next week. I will probably call rheumy Thursday if I have not heard from him by then.
Life is getting to the point of where I am very frustrated and tired of being sick. Being able to do minimal things in life is getting to me. My rheumy said try not to be frustrated but it is easier said than done. I was once a pretty active person and now nothing but a regime of rest, pain killers, tests, and injections. I feel useless to my family and a burden to them. They have to do some of my personal care and all of my housework. Hopefully this is just because winter has been particularly hard on me (and others according to my rheumy) and I will start to get better come Spring time. I certainly hope so. I want to camp and all that good stuff. But that is going to depend on my foot. And my knee. No knee replacement until my foot issue is resolved. I am hoping and praying that it can be resolved either medically or with some therapy. I don’t want to face surgery on my foot because that just sounds very painful. But if that resolves it and saves my toes, that is what I have to do.
We are getting a shower chair and a hand held shower head for me sometime this week. It will be easier for me to sit in the shower and easier to wash my hair whether I am doing it or Danny and the kids are doing it.
My family and my girlfriends have been just wonderful to me thru this ridiculously long flare. I love you all and thank you so much for being there for me.
We have a new family member! Our niece had her baby on Feb 3rd! Welcome to the family Grace Lynn! She weighed in at 8lbs. 2oz and 20.5 inches long. Mom and baby are doing just great. Big brother Tyler is just as proud as can be. He is a fantastic big brother. We love you all and will hopefully be down soon to see everyone. Congrats Jackie, Mike, and Tyler!
Thursday, February 1, 2007
The Mall, A flare, and other goodies
Yeah yeah I have been slacking. But I have been flaring. I was on a pred pack and now feeling a little better. I got out and went to the mall the other day. I used a wheelchair there so nagging from the peanut gallery!! I got my Valentines Day present early too. Another set of Mickey and Minnie dolls. These are specific to Valentines Day. Mickey is dressed as cupid with wings and and a bow and arrow. Minnie is just Minnie but the old fashioned one. They are cute as heck. When I die, my kids are going to auction off my pristine collection of Mickey and Minnie dolls and make a fortune lol.
We are getting an artic cold snap starting on Saturday. Lows dipping below zero and highs in the single digits. Wind chill factors at 25 below and lower at times. This is supposed last until Wednesday. We are supposed to have the coldest temps in the last decade. Oh yay. NOT! LOL. Of course I have a rheumy appointment Monday lol. That is about the only time I will be venturing out since the cold is not good for my asthma. The asthma has been acting up lately too. I can’t seem to shake the heavy feeling in my chest lately. I think it is just the cold weather and the flare that is making it bug out. If I am no better by the time the artic blast leaves I will make a doc appointment.
My family has been their usual wonderful selves during this past flare. Danny is very attentive to my needs and is right there when I need something. I know this is draining on him and I am hoping that my rheumy will write the script for a home health aide to come a couple of times a week and help out. Cart me around on errands etc. to give Danny a much needed break. Also to give the girls a little break with the housework etc. I don’t expect the aide to clean animal cages tho. That will remain the responsibility of the girls. But they do light housework which will be a welcome break for the girlies. And for me too. It will be cleaned the way it should be. Not the teenage way lol. I have nifty cleaning gadgets too. So doing stuff like my floors or my tiny bathroom won’t be too bad for the aide. Just hope whoever it is will be a nice person and someone that likes to joke around and isn’t too serious. Even tho I need an aide, I still want to make it as enjoyable for that person as possible. They are doing a service for me that is greatly appreciated.
My niece is overdue and very uncomfortable. I feel so badly for her. I just wanna hug her and tell her it will be ok. I did when we saw her last Sunday. I hope it helped. Everyone is bugging her about being overdue and when is Gracie coming. Sheeesh people leave the poor child alone. Gracie will either come when she is damn good and ready or my niece will be induced and we won’t give Gracie a choice about when she comes. My niece was late with my great nephew and I expect this to be a pattern for her. Poor baby. Mike wants another one and Jackie isn’t too hip on that right now. Maybe in a few years lol. Calm down Mike lol. You guys will just know when the time is right. Jackie does look fabulous tho. You can not tell that she is pregnant from behind. She still just glows and is very beautiful. She doesn’t think so, but we all see it and know.
Well, the mtx is kicking in early. I am tired and kind of nauseated. I think I will take a phenagren and toddle off to the bed. Danny must be working late because he is not home yet. Poor guy. I love him so much and feel so bad for him sometimes. Lately he has had to work in a barrel that has to be pre heated to 400 degrees. Lots of sweating going on there. It is just draining on him. Then on top of it I pile what I need. Thankfully he is a patient man with me. I can’t wait to get that aide relieve some of the burden of me from him. Thank goodness that man loves me as he does. I would be lost without him. Both physically and emotionally.
My Katie Kat is having a rough time lately too. I am worried about her. She won’t take the pred and she needs to. I guess me and Kami will have to gang up on her again if she still won’t take it. Me, Kami, and Deanna ganged up on her tonight and I don’t know if she is going to listen to us. I hope she does. I will have to beat her with my crutches if she doesn’t. Katie has one more month til insurance. If we can just get her to take the pred she will have a better time of it waiting for that insurance. I love that woman dearly but sheeeesh she is a stubborn one. Worse than I am sometimes. I guess I will just have to call her daily and check on her. And nag her about the pred. When you have RA, your body does not produce enough corticosteroids on its own. That is why we need the pred so often. And that is why it is hard to wean off of it. Once we get to 7.5mg our bodies freak out. If it isn’t one thing, it’s another when you have RA.
Sushi is doing great. We are a big success and now you can find us on the first page of a Google search. WOOOHOO we are big time now!!! We were so happy when we saw that. We work hard on Sushi making it great not only for us, but for all of our members. And without them we wouldn’t have a Sushi at all. So thank you to everyone that visits us and for making us the success that we are.
Good night everyone. Stay warm!!!
We are getting an artic cold snap starting on Saturday. Lows dipping below zero and highs in the single digits. Wind chill factors at 25 below and lower at times. This is supposed last until Wednesday. We are supposed to have the coldest temps in the last decade. Oh yay. NOT! LOL. Of course I have a rheumy appointment Monday lol. That is about the only time I will be venturing out since the cold is not good for my asthma. The asthma has been acting up lately too. I can’t seem to shake the heavy feeling in my chest lately. I think it is just the cold weather and the flare that is making it bug out. If I am no better by the time the artic blast leaves I will make a doc appointment.
My family has been their usual wonderful selves during this past flare. Danny is very attentive to my needs and is right there when I need something. I know this is draining on him and I am hoping that my rheumy will write the script for a home health aide to come a couple of times a week and help out. Cart me around on errands etc. to give Danny a much needed break. Also to give the girls a little break with the housework etc. I don’t expect the aide to clean animal cages tho. That will remain the responsibility of the girls. But they do light housework which will be a welcome break for the girlies. And for me too. It will be cleaned the way it should be. Not the teenage way lol. I have nifty cleaning gadgets too. So doing stuff like my floors or my tiny bathroom won’t be too bad for the aide. Just hope whoever it is will be a nice person and someone that likes to joke around and isn’t too serious. Even tho I need an aide, I still want to make it as enjoyable for that person as possible. They are doing a service for me that is greatly appreciated.
My niece is overdue and very uncomfortable. I feel so badly for her. I just wanna hug her and tell her it will be ok. I did when we saw her last Sunday. I hope it helped. Everyone is bugging her about being overdue and when is Gracie coming. Sheeesh people leave the poor child alone. Gracie will either come when she is damn good and ready or my niece will be induced and we won’t give Gracie a choice about when she comes. My niece was late with my great nephew and I expect this to be a pattern for her. Poor baby. Mike wants another one and Jackie isn’t too hip on that right now. Maybe in a few years lol. Calm down Mike lol. You guys will just know when the time is right. Jackie does look fabulous tho. You can not tell that she is pregnant from behind. She still just glows and is very beautiful. She doesn’t think so, but we all see it and know.
Well, the mtx is kicking in early. I am tired and kind of nauseated. I think I will take a phenagren and toddle off to the bed. Danny must be working late because he is not home yet. Poor guy. I love him so much and feel so bad for him sometimes. Lately he has had to work in a barrel that has to be pre heated to 400 degrees. Lots of sweating going on there. It is just draining on him. Then on top of it I pile what I need. Thankfully he is a patient man with me. I can’t wait to get that aide relieve some of the burden of me from him. Thank goodness that man loves me as he does. I would be lost without him. Both physically and emotionally.
My Katie Kat is having a rough time lately too. I am worried about her. She won’t take the pred and she needs to. I guess me and Kami will have to gang up on her again if she still won’t take it. Me, Kami, and Deanna ganged up on her tonight and I don’t know if she is going to listen to us. I hope she does. I will have to beat her with my crutches if she doesn’t. Katie has one more month til insurance. If we can just get her to take the pred she will have a better time of it waiting for that insurance. I love that woman dearly but sheeeesh she is a stubborn one. Worse than I am sometimes. I guess I will just have to call her daily and check on her. And nag her about the pred. When you have RA, your body does not produce enough corticosteroids on its own. That is why we need the pred so often. And that is why it is hard to wean off of it. Once we get to 7.5mg our bodies freak out. If it isn’t one thing, it’s another when you have RA.
Sushi is doing great. We are a big success and now you can find us on the first page of a Google search. WOOOHOO we are big time now!!! We were so happy when we saw that. We work hard on Sushi making it great not only for us, but for all of our members. And without them we wouldn’t have a Sushi at all. So thank you to everyone that visits us and for making us the success that we are.
Good night everyone. Stay warm!!!
Subscribe to:
Comments (Atom)
